Summary
The use of screening reports could be
controversial for some people who provide or deny services to families and
children. This controversy may be the result of misunderstandings, or a
failure on the part of a professional, school or program to examine and
learn more about the purpose, validity, structure, safeguards, usefulness and proper use of
StepOne reports. In response to this potential issue, InCrisis is taking
appropriate steps to proactively develop, operate, monitor, inform and
improve services. InCrisis has taken steps to anticipate the impact of
reports and to mitigate those concerns in good faith. InCrisis will
continue to do so when offering new services and will address issues, as
they surface, by providing program updates and publishing additional
information on the InCrisis web site.
Developing and operating innovative
services for education and health care should also involve an assessment and
documentation of potential impacts. By documenting potential impacts on this website, InCrisis can invite consumer and professional feedback, monitor
services, mitigate foreseeable concerns and manage future services.
Documenting potential impacts is a professional and ethical activity. The
following is a summary of potential impacts.
Impact on Families
StepOne reports are designed to help parents identify and
respond to potential mental health problems as well as high risk behavior.
The screening takes place wherever parents have access to the internet.
This will most often be in the privacy of their own home. InCrisis
technology uses the highest level of encryption available in the private
sector. Data storage is at a higher level of security than medical records.
While reasonable steps have been taken to maintain privacy, parents must
exercise discretion regarding materials printed or presented on their
computer screen. Parents are responsible for security of their password and
results.
Information is gathered and documented in a manner that is understandable
and useful to parents and qualified professionals. InCrisis information
processing technology is designed to empower parents and professionals with
the ability to conduct evaluations, advocate for health care services, locate appropriate service
and monitor a child's behavior and progress. StepOne reports allow parents and professionals to
estimate the benefit of services and the impact of no services. This can be
done as needed, without appointment, and at minimal or no cost. This can be
of tremendous benefit to parents who live in rural areas where mental health services are
not available and are difficult to access. Parents who decide to seek help
will be in a position to seek help that is appropriate to their level of
need.
Use of StepOne reports are designed to place greater
responsibility on parents while empowering them with information necessary
to take initiative and to respond to potential problems and concerns.
It is a parent's responsibility to raise healthy
children who are socially responsible and safe. Parents cannot reliably
expect schools, public health systems, physicians and law enforcement to
identify and address signs of mental health and behavioral problems.
Public agencies and primary health care services are currently not funded,
nor is there evidence nationally that they will be staffed to provide the level of service
necessary when potential problems are identified. For this reason, parents
must become involved, educated and empower to seek care they believe is
appropriate and necessary while feeling confident that their privacy is
being respected.
Use of StepOne reports has
produced a measurable impact of Families. A surprising number of parents
agree on their child's behavior and history. Significant difference between
parents are
uncommon. However, a few parents may find they have significant disagreement
regarding their child's history and behavior. This may be the result of poor
communication or a lack of parental involvement in parenting. Tension may
surface in some cases between parents who need to be more involved with
their child and talk with each
other in order to provide consistent and appropriate parenting. To this end,
StepOne reports offer parents who are estranged, separated or divorced
a means to share information and focus discussion regarding potential
problems, prompting them to become more effectively involved
Responsibility for
prevention, detection and early treatment can be shifted more to parents who will have
a reliable means to help them examine behavior. By using StepOne reports, parents will
need to realistically examine their expectations of law enforcement, health care and
educational professionals. Information regarding these services are provided
with each report. A more comprehensive view, rather than a focus on
isolated behavior will likely result. To this end, many parents can expect
to gain a greater awareness regarding the impact of mental health and
substance abuse as well as family, school and social problems.
Parents who are researching prevention and intervention
options may discover
that there are no easy, simple, perfect or complete solutions. Many parents
may come to realize that prevention and early detection would have been
preferable to intervention and treatment (in hind-sight). Parents may also become more aware of the impact of ignoring problems, failure to
recognize early signs and the consequences of their inability or delay in
getting help.
There is no way to safeguard
against people who ignore or willfully and
intentionally misuse informational resources. A small number of parents may
attempt to use StepOne reports in a way that ignores the Terms of Use and
requirement for proper use that are outlined. A few
parents may try to trick or manipulate the system for reasons that are
associated with personal problems, legal agendas, or possibly their own
mental or addictive disorder. Parents may ignore and not
seek consultation when further evaluation is recommended. Some parents will
not be satisfied with their experience or the results of their
questionnaires. They may encounter problems with the internet or software,
or they will disagree with the level of risk or the potential problems that
are identified.
Impact on Medical Service
There is little doubt that mental health and
behavioral health are closely linked to physical health. In fact, the
research is such that this link is common knowledge in the medical
community. Despite this awareness, there is often a lack of structure in service delivery that
allows physicians to screen, evaluate and respond effectively to mental
health problems.
Health problems later in life are often related to
issues that originated in childhood. Emotional struggles, interpersonal
conflict and social problems affect behavior and choices. These problems can
in turn affect health and well-being as children grow into adults. Early
detection is recognized as important, yet physicians are almost never
reimbursed for screening, treatment or referral for problems that are not
deemed entirely physical in origin. The term "medical necessity" has been
used to limit third party insurance reimbursements to physicians. Problems
are not considered "medically necessary" if there is no objective or
observable evidence of structural or pathophysiological problems.
The practice of medicine is patterned with routines and
office structures that treat the consequences of illness and unhealthy
behavior. Medical practices are not designed for early detection and
prevention of contributing and co-morbid mental health problems. However,
this may change as there is a growing national public health care agenda,
evident in the executive and legislative government, to recognize the
importance of early detection and treatment of mental and emotional problems
in youth. But while concerns have been expressed by national leadership,
parity between medical and mental health care services is not the norm.
Funding for mental health is not an important or adequately funded agenda in the state and
federal legislatures. No where is this more apparent than adolescent and
children's mental health.
The full impact of StepOne reports on health care has yet to be
seen. One likely impact is that parents will bring their child to see their
family physician for a physical. Parents may do this in order to eliminate
the existence of treatable medical conditions that may be impacting the
mental and emotional status of their child. This includes acne, diet,
exercise, diabetes, thyroid disorders, anemia, sexual activity, hearing
problems, etc. In addition to a medical screening, physicians may also be
called upon to provide health information and guidance to children and their
parents and to make appropriate referrals to qualified mental health
professionals. In some cases, after further evaluation, a physician may
prescribe a psychotropic medication. In complex cases, physicians may need
consultation with or make a referral to a psychiatrist or psychiatric mental
health nurse practitioner. StepOne is designed to support referral and to
provide referral information in areas participating in a screening program.
When physicians treat mental and emotional disorders, their
primary treatment option will often be to offer antidepressants or an
anxiolytic. In some cases, they may prescribe medication for bipolar
disorders, attention deficits and disorders related to psychotic conditions.
Evaluation and documentation to support this course of treatment is an
expected and increasingly important standard of practice. Unfortunately,
physicians often find they lack the time, materials or other means to
support their treatment interventions. Prescriptions can be the result of a
best guess or trial and error. This is one area where StepOne reports can
help. StepOne reports can provide physicians with a substantially reliable
and comprehensive means to conduct further evaluation of their patients and
to make maximum use of their time.
There is a historical trend in which medical services avoid
interaction with mental health services. Physicians are likely to encounter mental health problems for which referral to
mental health professionals can be problematic. While physicians may refer
to professionals in their community, there is a scarcity of qualified mental
health professionals, and those that work with adolescents may not have room
for new patients.
When referral is necessary, making an appropriate referral
should be based on screening and face-to-face evaluation. A medical
examination may be a necessary part of that referral. StepOne reports are
designed to help physicians make more appropriate referrals.
Once a physician completes his or her evaluation,
documentation is always important. Documentation and decisions based on
screening, appropriate evaluation and other information is an excellent
means to provide appropriate care and to manage the risk of future problems.
Impact on Mental Health Services
Mental health professionals have long recognized a
relationship between mental health and physical health. More importantly,
they have been proponents of early detection and intervention for emotional
and behavioral problems before they become more severe and entrenched.
StepOne reports provide mental health professionals with the means to
identify children who are at-risk and those with serious problems. The
reports also provide the means to document a child's history and behavior so
as to complement evaluation services provided by qualified mental health
professionals.
StepOne report documentation provides
a useful means to begin initial counseling or therapy sessions with a focus
or strategy. This initial focus can save time and actually help counselors
and therapists develop and focus on a more positive relationship with
patients. Knowing the potential problems and the severity of those problems
will allow clinicians to approach each case in a more timely and strategic
manner. Initial findings shows that StepOne may reduce the number of
appointments by three.
During beta testing, InCrisis
identified potential problems
associated with emerging technology and traditional health care delivery
methods. These are not new to any emerging technology. Foremost, a few professionals will misperceive the purpose and scope of
StepOne reports. A small number of professionals will
not taken the time to thoroughly examine available information related to the
safeguards, development, operation and proper use of InCrisis services.
A few did not read the report entirely including information prepared
specifically for health and mental health professionals. As a direct result,
several professionals incorrectly concluded that StepOne reports were in some way intended to replace
or compete with mental health professionals.
InCrisis services are designed to function as a resource to support existing
services, provide appropriate outreach to underserved populations and to
empower parents to actually seek out care from appropriate professionals
including evaluation. StepOne reports will actually increase the efficiency in which
parents find help. Reports generated in communities where StepOne is
supported will provide community specific referral information. Professionals are more likely to receive and take
appropriate referrals for evaluation and treatment.
As with the medical community, mental
health professionals will in time discover that screening prior to the first
appointment will actually help them evaluate and manage problems more quickly
and effectively. Proper screening is an excellent means to manage the risk
of errors.
StepOne reports are highly reliable and comprehensive. The
comprehensive and reliable nature of these reports reduces bias and errors
in omission. The validity of brief face-to-face clinical interviews has never been
established as good. Interviews that are not comprehensive and thorough
cannot produce valid results. By using StepOne reports, mental health
professionals may increase the reliability, comprehensiveness and upper
limit of the validity of their interviews and results.
Impact on Public Education
reports address problems related primarily to emotional, behavioral and
addictive disorders, all of which may or may not be apparent in an
educational environment. In some cases, these problems may be the result of
stress, learning disabilities, social pressure, handicaps, medical problems
or untreated psychiatric problems.
Many of the problems facing parents
and their children are not the responsibility of the schools. Many
emotional, addictive and behavioral problems cannot be identified, evaluated
or managed by public school programs. Schools are able to offer physical
screenings for such concerns as hearing and vision problems, but "emotional"
and "behavioral" screening are far more complex, expensive, sensitive and
invasive. Families may not be willing to share private information about
their children to schools fearing their child might be labeled or
discriminated against. They may also object or discourage their children
from participation in mental health screening conducted by schools.
Early detection and intervention by
responsible parents, before it affects learning, could reduce the need for
special education services. Screening procedure can
assist with this process. With early detection and intervention, schools can
support children who may ultimately need special education services.
The public and media have expressed concerns about suicide and
self-destructive behavior in schools, but more concern is expressed about
the level and risk for violence in schools. StepOne reports are designed to
help parents identify and take steps to reduce the risk of suicide and
violence. Schools face a number of practical limitations in terms of
assessing the risk for suicide and violence in their student population.
School faculty, school counselors, psychologists and staff may not be in position to gather sufficient
information about every child including their history and behavior inside and outside
school. In fact, parents will have more information regarding their child's
history and behavior and it is ultimately the parent's responsibility to
keep their children safe and prevent their children from doing harm to
others. StepOne reports provide parents with a private means to screen
their child and to take action as they deem appropriate. These reports are
designed to
facilitate an opportunity for parents and schools to work together in order
to help a child.
Schools are not designed or staffed to provide crisis
intervention services. While schools must deal with problems that surface,
they cannot be expected to provide routine crisis intervention or mental
health services for families and entire communities. Schools are not
intended to serve as a community or a public health program. Where community
mental health services are lacking, by default, schools may be expected to
deal with these issues. Running a qualified crisis intervention service is
unrealistic for all but the most highly funded schools. StepOne reports
have been designed to give schools a resource for parents so that
parents can screen and identify youth at-risk.
Parents have rights and responsibilities.
School systems should not assume parental roles and responsibilities,
but instead, should involve, educate and empower parents to monitor their
child's behavior and seek care that parents believe is appropriate. To support parents, schools can provide parents
with information about a child's behavior and history at school. In most cases, parents should have more information
about their child that would be necessary for screening. By empowering parents
with a low cost, comprehensive and reliable screening alternative, StepOne
reports encourage parents to obtain further evaluation and to manage any
risk that is identified. In this way, schools can support parents and avoid
proximity to services that should be provided by mental health
professionals. It can
be argued that schools that conduct screening incur responsibilities and
obligations to manage the information they gather. Schools may wish to avoid roles that implicitly create an expectation on the
part of parents that schools can offer, evaluate or manage mental health and
behavioral problems.
The demand for special education
services as well as evaluation services will decrease over time as early
detection and intervention reduces those needs. In some cases, StepOne
reports may increase the number of requests for special education services
or evaluation requests for eligibility. StepOne reports are not designed to
make an eligibility determination, but they are designed to identify and
raise issues that schools and mental health professionals can evaluate
further.
StepOne reports provide information about special education
services including various limitations, as well as advantages, and StepOne
can provide initial
guidance. Realistic expectations on the part of parents may actually reduce
the risk for misunderstandings and conflict between parents and schools.
However, InCrisis notes that the reports may also raise issues that may
result in a conflict between parents and their child's school. Whether or
not StepOne reports will increase or decrease the amount of conflict
between parents and their schools will depend on the school, the community,
the people involved and the unique problems facing individual parents.
StepOne reports are designed to help reduce conflicts that may result from
parents seeking services that may simply not be the responsibility of the
school.
StepOne reports are designed to empower both parents and
schools. StepOne design mitigates the disadvantages that parents face if they are required to anticipate
and present information that schools need in order to initiate an
eligibility process. At the same time, schools cannot make a valid
determination if they are not provided with sufficient information. StepOne
reports are designed to help reduce the risk of mistakes by empowering
parents to obtain appropriate screening information and guidance on how to
work more effectively with schools. Providing schools with a reliable
screening report can empower parents and schools and help prevent
misunderstandings and conflict.
StepOne reports may expose social and behavioral problems
facing public education. Some of these will be related to school funding,
lack of special education services and various social problems within a
school. StepOne reports may also identify problems that may not be
appropriate for schools to evaluate and manage.
Impact on Educational Consulting
Educational consultants are a private sector resource for
parents who are seeking private education alternatives. In some cases,
educational consulting will include private intervention programs for youth
at-risk.
A qualified educational consultant has experience, training
and licensure in mental health or education (or certification in educational
planning). Educational placement and intervention invariably depends on an
assessment of a child's behavior as well educational and mental health
history. As a standard of care, an educational consultant should always
conduct or obtain a screening before developing an education or intervention
plan. In many cases, some type of behavioral or psychological evaluation
will be needed.
StepOne reports are designed to support educational
consultants in their screening process. StepOne reports do not replace the
need for an educational consultant. Educational consultants can help parents
determine if an intervention is necessary, identify programs, help with
admissions, monitor the child's progress, advocate as necessary, plan
further steps and provide families with other support. Historically, and
until recently, many parents preferred to locate and place their child by
working directly with a school or intervention program. This has become very
difficult as there are many programs to consider and some who use confusing
marketing tactics. When parents prefer to not use educational consultants,
StepOne reports are designed to help parents, schools and programs
recognize and properly evaluate potential issues that might otherwise be
missed. This is important because there are many programs in the United
States that admit children they cannot adequately serve, as well as children
who would be better served in another program.
The decision to place a child in a boarding school and
intervention program is an important and complex process that requires
informed consent. This means that parents must be provided with information
regarding their responsibilities, their rights and the risks involved.
Parents must also be provided with enough information to have realistic
expectations. InCrisis believes that informed consent can only be enhanced
when parents are provided with a range of placement options, comprehensive
screening results, as well as consultation and evaluation from a qualified
educational consultant or mental health professional. To this end, StepOne
reports are intended to bring parents and professionals together.
A few educational consultants, like a few mental health
professionals, will incorrectly conclude that StepOne reports are replacing
the role of consultants. This is not the intent or purpose. Among other
purposes, StepOne reports are designed to help parents who may not know
what an educational consultant is or how to locate one. Many parents, by
virtue of their geographic location, do not have access to an educational
consultant. These parents need support services and will not be served if
professionals consider only the communities they serve. There is a
tremendous scarcity of national educational consultants. In fact, many
states have only a few educational consultants.
StepOne reports are designed to be used by parents,
educational consultants and health care professionals. The information
provided is intended to bring parents and appropriate professionals
together. However, in some cases, StepOne reports may expose professionals
who may be providing services beyond their experience, training or ability.
There is a growing number of people in the U.S. who are offering educational
consulting services and are doing so without training, licensure or
certification.
There are other issues. There are probably only a few
consultants and mental health professionals who refer to the same programs
regardless of a child's needs. In some cases these consultants are
compensated financially either directly or indirectly. Mutual referral
arrangements that benefit programs and consultants is a growing practice
nationally. Kickbacks and mutual referral relationships have introduced a bias
into the referral process. There are also a few programs that offer a
"finders fee" for a referral. A few consultants accept some form
of "kickback" or compensation for a
referral. These practices are controversial and are not condoned by many
professional organizations as well as licensing boards. In fact, these
practices are one reason why InCrisis recommends parents work with qualified
educational consultants who are reputable members of the Independent
Educational Consultant Association (IECA).
StepOne reports provides information about "standards
of care", "standards of practice" as well as "ethical and professional
services." InCrisis expects that consumer protection information efforts may
upset a few consultants who provide questionable or outright unprofessional
and unethical services to parents. Some may feel threatened and attempt to
create controversy to defend their practices. InCrisis intends to make a
good faith effort to identify and mitigate problems in a reasonable manner.
StepOne reports may identify private
boarding schools and residential programs that are admitting children they
are not qualified to work with. StepOne reports are designed to help
parents and professionals make a determination on their own through
education and information. This is an important activity because there are
programs for youth at-risk that will accept almost any child regardless of
the presenting problems. In some cases these admissions are intentional
(ignoring important issues) and in other cases they are the result of
negligence (failure to identify issues).
Conclusion
Parents are the solutions. Parents are only
the problem when they are not involved, informed and empowered. Because parents have ultimate responsibility to care for
their child, StepOne reports are designed to reduce the risk of erroneous
decisions by providing comprehensive, meaningful and organized information
about a child based on the parent's perspective. StepOne reports are
based on an premise that parents, and not just professionals, should be empowered to advocate
and participate in the problem solving and decision making process. In
effect, parents must have a "voice". To find
the best solution, parents should be involved, informed and empowered to
seek consultation with
qualified professionals regarding education, treatment or intervention
decisions affecting
their children.